Osteochondritis Dissecans

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Topic Title: Osteochondritis Dissecans
Created On: 04/21/2003 07:15 PM

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 10/03/2016 08:34 AM

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mario_j

Posts: 1

 Hi,

very touching story. I am too a patient but recovered and doing well so far ( knock, knock). I came accross this web site that has a very good story and information; check it out: http://www.ocdissecans.com/

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 04/18/2005 04:46 PM

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humansoul

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hi there i had surgery on both of my knees (at different times) for OCD. it was fairly bad, one knee was locked up. and i spent a good deal of time on crutches for both knees. however i had surgery and they drilled disolvable pins into my knees to stimulate bone growth. i'm happy to report it was very successful and i'm doing all the activities i was apt to do before the surgeries. interestingly enough when i was little...say 1st grade or so my knees used to "pop", "snap", "crack" (call it what you want) all the time. occasionally it was so bad that i couldn't walk because the pain was so intense. the doctors said it was just growing pains. life went on and occasionally they'd pop but a little less than ten years l8r one of my knees locked up and then a different doc. saw my knees and discovered it was OCD. Best of luck to all you who are looking at surgery and other methods of healing.
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 03/15/2005 12:46 PM

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kas

Posts: 3

My son will be 16 yrs. old next month and had OCD surgery last week on his rt knee. There wasn't any bone fragments found or torn cartilage and his growth plates are still open. His surgeon is hoping for a full recovery. He is on crutches for 6 weeks(non weight bearing), and hopefully can return to sports in 4 to 6 mos. Any other promising stories? I know that the older you are, the chances for full recovery are more slim.
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 03/08/2005 05:46 PM

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momfitz

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Oops! This is just a correction. The dates for the surgeries were 2003 and 2004. I was just a year ahead. My how time flies when we are having so much fun. My son tells me that 8 weeks on crutches was a lifetime!
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 03/08/2005 05:39 PM

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momfitz

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I have not written on here for some time but will be glad to share the experience that we had with our son in regards to his recovery from the surgery. He was diagnosed with OCD in April of 2004. At that time he had arthroscopic surgery and then we went to a specialist in Indianapolis. He had open knee surgery in July, 2004 to have carticel replacement and bone grafting from his shin. He was on crutches for 8 weeks with non weight bearing therapy. Within 6 months he was pain free and moving quite well. He was very disapointed that the doctor made him wait until July, 2005 for anohter surgery before he would consider releasing him to his beloved sports activities. He had another scope done in July and everything looked great with what the doctor told us as a 90% effective growth. He is a senior this year and was able to return to football as a kicker and is now playing baseball. He is a pitcher and at this time has been training since December. He is also playing some basketball in the intramural program at school. He will also enter college this fall and will be kicking for the Tri State University in Indiana. We are very excited that he has had a full recovery. It will be two years since the process has begun and I would recommend checking into all possibilities for healing your bones. There are many opinions for the best recovery and healing so check them all. Good luck. Deb
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 03/08/2005 01:28 PM

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kas

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I'm so glad to hear a success story! Can you please tell me how long your recovery was before you could be 100% active again? My doctor says 4 to 6 months.
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 03/07/2005 10:23 PM

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IAGH1790

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From Allan R. Dunn, M.D., Miami. IAGH.COM I have treated a few cases of osteochondritis of the knee and also of the ankle. I perform arthroscopic surgery and do abrasion of the avascular lesion sometimes rather deeply to expose the vessels deep in the bone. Then I give a series of Intra-Articular Growth Hormone (IAGH) injections. The previous avascular lesion heals in within 2 to 3 months, and the patient is able to resume full activity in 9 months. To learn more about IAGH read the web-site IAGH.COM.
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 08/15/2004 09:01 PM

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justin

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Hey, Im a 15 yr old male and i've been told that a large lesion has formed on my lateral femoral condyle, it's now currently north meaning i can't bend my leg. The doctor said that like i won't be able to run again but i would like to. He has formed a meeting with knee specialists and they have pretty much said im screwed. Do i have any hope on playing rugby again? Is there a cure that may be found in the future?
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 04/09/2004 05:18 PM

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caryphoenix

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I am 28 years old and had the bone drilling surgery in October. I was On crutches for about 8 weeks and then began pysical therapy for about another 8 weeks. I just visited my surgen in mid March and I still have pain, it is getting a little better but I still can not jump on it. I got an email from someone who got the same surgery will a 50 piece size lesion who had a full recovery with the same proceder. I think it all just depends but I have read that the younger you are the more likely the recovery. Also if you daughter is under 25 her bones have not commpletely ossified and it gives her a better chance for bone growth. I go back to the doctor in July and he has already suggested the bone graft. I have been taking calcium with viatam D suppliments, in hopes that anything will promote growth. I think that bone drilling is considered likely to work. Good luck. Cary
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 04/09/2004 12:35 PM

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heyJano

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I have a daughter that has been diagnosed with OCD. I am just curious as to how old you ar? I have read that drilling in the bone to establish the new growth is not usually effective in patients over 16 years of age because of the fact that they have stopped growing. My daughter had this procedure done 2 weeks ago and will be on crutches for another 10 weeks. We are being sent to a specialist who does the cartlidge transplant because the Dr. doesn't seem to think the procedure with the bone drilling will be effectiv. She said the lesion is large but yours sounds large and the treatment was effective for you. Reading your story has given more hope than I have had since learing and reading about OCD. Thank You!
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 10/16/2003 10:40 AM

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caryphoenix

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I have recently been diagnosed with OCD and have to see a surgeon next week. I have been reading a lot about it since and I am freaked out, for the most part surgery does not seem to keep it from reaccuring. Any suggestions for calming me down. I would appreciate if anyone has suggestions on questions to ask the surgeon? Also I live in Portland Maine and would appreciate the name of the doctor in Mancester NH.
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 10/02/2003 06:32 PM

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reebajo

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I had the surgery in early June for OCD in my knee...the surgery was 100% effective and I have no pain in the knee and can now exercise and go up and down stairs without thinking about it..the procedure was done in Manchester, NH and I can refer you to hte MD if you wish but do not know if you are anywhere around here...12 holes were drilled in my knee to reestablish blood flow and new bone was evident within 2 months and now has been totally replaced...the size of the bone loss looked to be about a 50 cent piece..sorry I have not posted and hope that this gives someone some hope...
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 04/24/2003 06:54 PM

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momfitz

Posts: 9

From everything I have read and been told by my son's doctors that is what you have. There are 3 theories to the loss of bone and one of them is a lack of blood supply that causes the bone to die and essentially erode away. I'm not sure what the doctor has told you as far as treatment and there are several methods. My son is 16 and is looking at a surgery that would keep him off of his knee for 6 to 8 weeks and out of sports for up to 9 months. There are several web sites to find out more about OCD for some good night reading. I wish you the best of luck. Deb
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 04/21/2003 07:15 PM

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reebajo

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I just got the news that I may have OCD...I am a 63-yr. old female, very active...but I am a bit stumped in that my doctor ordered an MRI next week because he said that some of the bone in my knee was gone..I could see a vacant space in the x-ray...he said that it had lost its blood supply...is this OCD?..I am very concerned and of course, thinking the worse..am not very uncomfortable except for climbing stairs which is near impossible.
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